Caring and Accompanying until the End of Life
Code: 106134 ECTS Credits: 3| Degree | Type | Year | Semester |
|---|---|---|---|
| 2500891 Nursing | OT | 4 | 1 |
Contact
- Name:
- Jessica Izcara Cobo
- Email:
- jessica.izcara@uab.cat
Teaching groups languages
You can check it through this link. To consult the language you will need to enter the CODE of the subject. Please note that this information is provisional until 30 November 2023.
Prerequisites
There are no prerequisites.
Objectives and Contextualisation
- Know the different health structures and organizations aimed at caring for the elderly, and recognize the role of nurses in care teams in older adults.
- Identify the elements of the assessment of palliative care, and recognize its usefulness and application in clinical practice.
- Select the most appropriate interventions to help individuals and families take care of themselves adapting to the changes produced by the disease process.
- Differentiate the necessary care in oncological and non-oncological diseases.
- Identify the concept of end of life and palliative care.
- Know different meanings of death from a social, historical and cultural perspective.
- Identify interventions aimed at caring for individuals and families in end-of-life situations or with palliative care needs.
- Identify interventions aimed at guaranteeing autonomy during decision-making.
- Analyse the most up-to-date scientific evidence on nursing care during end-of-life processes or with palliative care needs.
- Identify taboos, prejudices and assumptions in people and societies about death and ageing.
- Develop a relationship of help in the care of people and families in end-of-life situations or with palliative care needs.
Competences
- "Demonstrate an understanding of people without prejudice: consider physical, psychological and social aspects, as independent individuals; ensure that their opinions, values and beliefs are respected and guarantee their right to privacy, through trust and professional secrecy."
- Act with ethical responsibility and respect for fundamental rights and duties, diversity and democratic values.
- Base nursing interventions on scientific evidence and the available media.
- Make changes to methods and processes in the area of knowledge in order to provide innovative responses to society's needs and demands.
Learning Outcomes
- Acquire and use the necessary instruments for developing a critical and reflective attitude.
- Analyse nursing interventions justifying them with scientific evidence and/or expert opinions that support them.
- Analyse the physical, psychological and social aspects affecting the autonomy and independence of individuals.
- Analyse the problems, prejudices and discrimination in the short and long term in relation to certain people or groups.
- Apply scientific evidence in the planning and practice of nursing care.
- Consider the physical, psychological and social aspects of situations of conflict from a bioethical point of view to reach a solution.
- Identify the appropiate actions that promote respect at the people’s psychosocial answers to health situations (particularly illness and suffering).
Content
1. Death, culture and society.
2. Oncological and non-oncological diseases.
3. Palliative care and end of life
4. Control of symptoms in a situation of last days.
5. Pharmacological and non-pharmacological interventions in the end-of-life process.
6. Emotional accompaniment.
7. Sedation vs Euthanasia
8. Health resources.
9. Assessment instruments.
10. Living wills document.
Methodology
The subject will be developed using two teaching modalities:
1. Theoretical classes. They will be expository classes where the teacher will explain the most relevant theoretical contents to solve the learning outcomes. In addition, discussion dynamics or case analysis can be established.
2. Seminars. They will be active activities focused on the application of the knowledge learned in the classes in the theoretical classes, encouraging teamwork, critical thinking, creativity and reflection
Class attendance is mandatory in 80%
Students can request tutorials with the teacher to clarify concepts or resolve incidents.
15 minutes of a class will be reserved, within the calendar established by the center/degree, for the complementation by the students of the surveys of evaluation of the teacher's performance and evaluation of the subject / module.
Annotation: Within the schedule set by the centre or degree programme, 15 minutes of one class will be reserved for students to evaluate their lecturers and their courses or modules through questionnaires.
Activities
| Title | Hours | ECTS | Learning Outcomes |
|---|---|---|---|
| Type: Directed | |||
| Personal Study | 50 | 2 | 3, 4, 2, 7 |
| Seminar | 12 | 0.48 | 1, 4, 2, 7 |
| Theory | 13 | 0.52 | 3, 5, 6, 7 |
Assessment
The evaluation of the subject consists of two tests:
1. The Learning Portfolio is a space where students must collect the exercises carried out during the seminars. It must also incorporate all the complementary materials used in the resolution of the exercises, such as scientific articles, protocols, clinical practice guidelines, videos, images, etc.
This portfolio will be evaluated in two moments of the subject in order to promote continuous evaluation. A specific rubric will be used. Each of the two deliveries has a weight in the final grade of 40%.
2. Self-evaluation. This activity has a weight in the final grade of 20%. Students must write a report in which critically and reflectively evaluate the learning acquired in the subject, as well as identify and argue their strengths and weaknesses in terms of learning and propose interventions to improve weaknesses and maintain strengths. This activity will be presented at the end of the subject.
It is necessary to have passed all the evaluation activities to be able to calculate the final grade.
According to agreement 4.4 of the Governing Council 17/11/2010 of the evaluation regulations, the grades will be:
0 to 4.9 = Fail
From 5.0 to 6.9 = Pass
From 7.0 to 8.9 = Notable
From 9.0 to 10= Excellent
Non-Evaluable will be understood as those situations in which it has not been submitted to any or all of the evaluation activities. When the student does not attend any or all of the planned assessment activities = Not Evaluable
Students have the right to review the assessment tests. For this purpose, the date will be specified on the virtual campus.
The copy or plagiarism of any of the evaluation activities will entail the suspense of the subject with a zero without option to recovery.
This subject does not provide for the single assessment system
Assessment Activities
| Title | Weighting | Hours | ECTS | Learning Outcomes |
|---|---|---|---|---|
| Portfolio 1 | 40% | 0 | 0 | 1, 3, 4, 2, 5, 6, 7 |
| Portfolio 2 | 40% | 0 | 0 | 1, 3, 4, 2, 5, 6, 7 |
| Self assessment | 20% | 0 | 0 | 1, 4 |
Bibliography
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Jiménez, Ana María Carmona et al. “IMPACTO FAMILIAR DE LA SEDACIÓN PALIATIVA EN PACIENTES TERMINALES DESDE LA PERSPECTIVA DEL CUIDADOR PRINCIPAL.” Psicooncologia 13.2/3 (2016): 351–365.
Acedo Claro, Clementina, and Bárbara Rodríguez Martín. “Sedación paliativa.” Revista clínica de medicina de familia 14.2 (2021): 93–97.
Eich, Melisse et al. “The Principles and Values Implied in the Practice of Palliative Sedation and the Euthanasia/ Principios e Valores Implicados Na Pratica Da Sedacao Paliativa e a Eutanasia/ Principios y Valores Implicados En La Practica de La Sedacion Paliativa y La Eutanasia.” Interface (Botucatu, Brazil) 22.66 (2018): 733–.
Taboada R., Paulina. “Sedación paliativa (parte II): Cuestiones éticas y principios morales.” Acta bioethica 20.2 (2014): 225–235.
Palacio G., Carolina. “"El papel de la resiliencia y de los factores psicosociales y espirituales en la adaptación de los cuidadores principales de pacientes con cáncer avanzado/final de vida.” N.p., 2020.
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Porcar Rodado, Elena, David Peral Sanchez, and Marina Gisbert Grifo. “El documento de voluntades anticipadas. Comparativa de la legislación actual en el marco de la Unión Europea.” Revista española de medicina legal 47.2 (2021): 66–73.
Ibars Cervera, Maria Jose et al. “Comunidad y Documento de Voluntades Anticipadas (DVA), Una Realidad.” International journal of integrated care 19.4 (2019): 314–.
Maté-Méndez, Jorge et al. “Consenso sobre el estándar de atención psicooncológica, complejidad psicosocial y actividad asistencial en el Instituto Catalán de Oncología.” Psicooncologia 18.1 (2021): 11–.
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Oncología.Oncología (Barcelona, Spain). Barcelona: Ediciones Cutor., 1976.
Castellano-Tejedor, Carmina. “Els beneficis del suport social durant el càncer.” (2015): n. pag.
Cuidados Paliativos. Editorial Alfil, S. A. de C. V., 2022.
Sanz Ortiz, Jaime. Cuidados paliativos : recomendaciones de la Sociedad Española de Cuidados Paliativos (SECPAL) / [autores: Jaime Sanz Ortiz ... et al.] ; prólogo de Marcos Peña Pinto. Madrid: Ministerio de Sanidad y Consumo, Secretaría General Técnica, 1993.
Guía de recursos sanitarios y sociales en la fase final de la vida en Gipuzkoa. San Sebastián: Sociedad Vasca de Cuidados Paliativos, 2003.
Benito, E. (Enric) et al. El Acompañamiento espiritual en cuidados paliativos : una introducción y una propuesta / E. Benito, J. Barbero, A. Payás. Madrid: Arán, 2008.
Barbero Gutiérrez, J. Javier, and Evolutiva i de l’Educació Universitat Autònoma de Barcelona. Departament de Psicologia Bàsica. “El trabajo en equipo de los equipos multidisciplinares de cuidados paliativos: análisis de la realidad española.” [Barcelona] : Universitat Autònoma de Barcelona,, 2014.
Allende Pérez, Silvia. Manual de cuidados paliativos para pacientes con cáncer Silvia Allende Pérez ...[et al.]. México D.F: Editorial Alfil, 2012.
Cabodevilla Eraso, Iosu. Guía no farmacológica de atención en enfermedades avanzadas : cuidados paliativos integrales / Iosu Cabodevilla Eraso. Bilbao: Desclée de Brouwer, 2014.
Jiménez López, Francisca Rosa, Pablo Román López, and María del Mar Diáz Cortés. Cuidados de enfermería en situaciones complejas de salud : proceso oncológico, cuidados paliativos, muerte y duelo / autores, Francisca Rosa Jiménez López, Pablo Román López, María del Mar Diáz Cortés. Almería: Editorial Universidad de Almería, 2015.
Cabodevilla Eraso, Iosu. Guía no farmacológica de atención en enfermedades avanzadas : cuidados paliativos integrales / Iosu Cabodevilla Eraso. Bilbao: Desclée de Brouwer, 2014.
Guía de práctica clínica sobre cuidados paliativos : Guía completa / [autoría: Grupo de Trabajo sobre GPC sobre Cuidados Paliativos]. Vitoria-Gasteiz: Servicio Central de Publicaciones del Gobierno Vasco, 2008.
Software
Does not require specific software.